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Motherhood!!!

Being a mother is not easy but being a special need mother is exhausting, more demanding, unpredictable and at the same time it is rewarding, exploring inner-self and celebrating small success.

It’s exhausting, because you have to be alert all the time despite of the fact that your child is toddler or adult. You will be doing same things for your child all the time like feeding, bathing, etc. You will be handling society pressure as if it was your “fault”! Exhausting in such a way that you will not be able to rest for longer period of time. Thoughts of if’s and but’s will surround your brain.

It’s demanding, because you will have to be there for your child, ALWAYS!  You have no social life. Whenever you plan for socializing, you will have a complete list of items/ activities that you would have to take with you so that your child does not get bored.  You have to plan your day according to your child’s routine. A small change in routine results in a disaster.

It’s unpredictable, because, every day is a new day at your home.  Your child can say a word, do something, socialize without any difficulty one day and can completely forget that the other day. Some days are good and some days are bad. When you think that this transition will be difficult for your child, it goes without any problem and when you think that this transition will be easy, it becomes frustrating.

It’s rewarding, because years of hard works definitely pays. We grace our souls with patience, determination, tolerance and acceptance. We build patience toward our child’s progress. We have determination towards our goals for them. Maintain tolerance towards offensive comments. Always accepting our children with their diagnosis and fighting for their rights in society.

By exploring inner self, I mean, you have no idea, how creative you are until you become a mom to special need. Your mind is always running to explore new opportunities to teach your child a smallest concept. You work day and night to teach your child how to be independent, working on those unnoticeable things which children learn by themselves.

We celebrate smallest achievements no matter at what age our child learns to sit, eat, use toilet, play, read, write, and understands instructions. Celebrating child saying phonics sound after years, celebrating child says mama meaningful, celebrating eating a fruit after years of struggle to taste, celebrating a day without tantrum and the list goes on.

Our fears are true; our concern is right and our love for our children is real. No one understands that until they are in our shoes. All we need is a little acknowledgment from our families, a minor understanding of our situation, a bit of support from society and an empathetic world towards our children.



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